Chemo

As most of you know already, tomorrow was the day Michael was going to do his round of chemo. That has since changed- he'll be going in this afternoon. There's apparently a big storm headed this way, so Geisinger actually called him and asked if he wanted to do it today so as to not have to do the one hour drive to & fro tomorrow during the storm. Nice and considerate, eh? He had actually JUST been at Geisinger this morning for an appointment and they called him as he was about half way back here, so now he's on the homestretch to pick up Max and me and then we'll head back.

Here goes...

UPDATE: Scratch that- we're going to keep tomorrow's appointment and brave the weather. We just found out that Max wouldn't be able to go back into the treatment room with us, so he and I would just be sitting in the waiting room, which defeats the purpose of being there with Michael.

Update

Hi Everyone,

First and foremost, thank you for your prayers, thoughts and support. Please keep bringing them on- they are needed!

This morning's update: Jean's eyes are open and she recognizes Allan and the boys. A few of her cousins have travelled to be there as well. They had to put her 'boxing gloves' back on her because she's been pulling out tubes. Her right hand and leg are no longer paralyzed.

They're doing another CAT scan this morning to see if the swelling has gone down and Allan will have another meeting with Jean's doctor afterwards.

More to come...

Let's Make Another Miracle

There's no real easy way to say this. Max's Great Aunt Jean was struck by a hit and run driver a half block from her house last night. She's in intensive care with a concussion, contusions, and a hematoma on the brain.

Aunt Jean and Uncle Allan were there for us during Max's dark days. They drove up several times to sit with us in the hospital and to provide a respite from the grinding days in the NICU. Their love and hope inspired us and were a large part of us being able to keep our sanity during those days.

Please help us send Allan & Jean and their sons Matt and Chad and their families comfort and healing during this crucial 72 hour time period. They mean so much to us. And we've done it before. Let's do it again.

Progress

Mr. Man had another great date with his physical therapist today. She was really impressed with how much weight he's gained and how much stronger his neck has gotten in the past week. He's doing so well that she added 'Bumbo Time' into his daily routine. (Thanks, Niswanders!)

Carboplatin and You

I had my meeting the the chemical oncologist yesterday. It sealed the deal on chemotherapy. Apparently, just this July, a study reported to a large group of doctors at a conference that the use of chemotherapy on patients with Stage I seminoma cancer is just as effective as radiation over the course of 5 years (the length of the study as of the presentation...it's an on-going study). This is significant because chemo has fewer long term effects than radiation. Angie was sold as well, and frankly, she had greater misgivings about chemo than I did. Something about "not wanting poison pumped into her husband's body." I told her that it was for the greater good, and, hey, all the cancer patients are doing it! Max really didn't care either way, he just wanted to be held.

So, on Friday, December 19th, I'll report to Geisinger at 1pm and sit down for about two hours and get pumped full of carboplatin. Angie will be driving me home and Uncle Dave will be spending some quality time with Max for the day. I'll be nauseous for a couple of days afterward, and then be at my weakest 7-10 days after the treatment. This is when I'll need to watch infection and getting sick and all the usual chemo stuff. Fortunately, or unfortunately, depending on how you look at it, we'll be at Nana's for the holidays. This time, unlike Thanksgiving break, I won't have a paper to write (which, incidentally, I got very high marks on that one) and I can just sit back and be sick. Or lazy. Or both.

This upcoming week is crazy stupid busy. Tomorrow I have to have a set plotted out for class and I have to meet with my Literature and Criticism group in the evening, then I have to set up a presentation of all the work I've done this semester. I have to turn in my final paper in the morning, a group presentation on Thursday afternoon, and the presentation of all my work right after that. I have design class Friday morning and a doctor's appointment Friday afternoon. The weekend looks pretty open, now that I think about it, and Friday will be the last day of classes for the semester. Woo-hoo!

The doctor's appointment on Friday is to see if I have any healthy sperm after the cancer. If I do, I have the option (at a cost) to bank my boys for future use. The chemotherapy may leave me sterile. This is probably the most degrading part of the cancer experience for me. What I view as a very personal matter is going being opened up to a bunch of strangers. Worse yet, if I do need to bank my boys, I have to pay for it. Capitalism at its best. Of course, in another form of society, my personal health and aptitudes may not qualify me to begin with. Gattaga, anyone?

Sometimes, misery doesn't love company. Our close friend, Shawn, and his family are going through a hell of a year. I don't want to speak out of turn, as private matters should remain as such until brought forward by those involved. But what I can say is that I never like to see friends suffer and have to deal with hardship, and this year, I've watched Shawn deal with more than his fair share in 2008. But he's done it with strength and conviction. He's been here for us in more ways that I can count. If you ever need a definition of what a true friend is, I'll talk to you about Shawn. And right now, we wish we could be with him at our favorite bar in Pittsburgh while we put our arms around each other and cry a little and raise our glasses to a bright future and knowledge gained. But circumstance being what they are, we can't be there right now, so instead, we will hope, wish, and pray that he and his family are given some comfort. I would ask that all of you do the same for this dear friend whom we love very much.

Hang in there, buddy.

Three Months?!

Today at 11:07am EST, Miracle Max is officially 3 months old! It has definitely been a whirlwind and we're constantly amazed at how much he's changed in such a short period of time. It is with difficulty (and pride) that we post the above left picture, as it was taken by a nurse shortly after we were wakened and summoned to the NICU to say goodbye to Max. It was truly one of the most terrifying nights we have ever experienced and we hope that other parents out there never have to go through anything like it... but we believe in miracles and the pic on the right is proof that they exist!

I'd take another shot of him right now, but he's finally asleep on his boppy in my lap and isn't a fan of being awakened by Mommy's camera flash. (Yes, perhaps he has a little too much experience with this already...)

Yet there are the rare times I'm able to get a good one without waking him (like last night) and boy, is it worth it!

'Tis the Season

We hope everyone had a relaxing and enjoyable Thanksgiving. Max was a busy guy over the holiday! On the family side, his Aunt Dr. Becky, Uncle James & Aunt Katie all flew in from their respective homes and on the friend side, Shawn, Brian & Andrew and Pisor visited as well. Max was passed back and forth all weekend and was never at a loss for attention! (I even had to cut in at one point for dibs on MY personal time with him!) Some highlights were: Nana's deeelicious Thanksgiving meal, playing the hilarious board game 'Don't Be a Dork', taking turns documenting the holiday with the awesome video camera Uncle Dave bought us and (as mentioned in one of Michael's previous blogs) actual SLEEP! Becky and I also went to see the new holiday movie Four Christmases and I fell asleep 3/4 of the way through it and woke up just in time for the credits. Sweet.

Since that blessed Thanksgiving Eve, Max has been giving us about 4-4.5 hours of sleep each night. FOR REAL! It's been an incredible gift. We've met with both his physical therapist and massage therapist in the past two days as well. Both are very nice ladies who will be a great asset to Max's development. The physical therapist will visit us once a week for the next two years and the massage therapist will visit us three more times in the coming months. The physical therapist was very impressed with Max's strength and alertness. She gave us several exercises to use during play time. The massage therapist taught me a couple techniques to help aid the end of his regular constipation as well. He goes back in for his next synagis shot in about a week and they'll probably weigh him again. We estimate that he's definitely over 10 lbs now! He has rolls of baby chub on his legs and neck- "it's okay to have rolls of fat when you're a baby, especially a preemie!" as Michael says. He's also starting to give us what we think are actual smiles. Talk about melting your heart...

A Michael update: he has an appointment this coming Monday with the chemotherapy oncologist at Geisinger. We should hopefully learn more then on when they intend to do it. Due to the potential side effects, we wouldn't be surprised if they wait until right after the new year so he can enjoy the Christmas holiday. He also has another CAT scan on the 22nd. On a side note, he seems to be loving grad school. It's nice to see him so excited and intellectually stimulated by the work and people. Sometimes it seems like we talk on the phone in between classes and work more than in person (thanks, Verizon!), but we knew it would be like this and we know it will be worth it once the three years are up! I'm so proud of him.

Next weekend we'll be introducing Max to the glories of the local Victorian Christmas extravaganza. It's apparently quite the sight and I'm a big fat sucker for all things Christmas. Max has recently started a love affair with lights (you should see him sit and stare at the dining room ceiling at Nana's), so I'm thinking he'll love all the gussied-up trees just as much as I do.

I had my first yearly viewing of "National Lampoon's Christmas Vacation" while my mom was here a few weeks ago. It's a family tradition dating back many years when we'd watch it at Grandma & Buddy's (Grandpa) house over and over. I dare anyone to a quote fest- I pretty much (to my husband's chagrin?) have the whole thing memorized back and forth. ("Is Rusty still in the Navy, Clark?", "She'll see the tree later Clark, her eyes are frozen", "See Russ? Can't see the line", etc etc etc.)

And with the holidays comes festive music... I won't lie- I pulled out the Mariah Carey Christmas Album a couple weeks ago and just added Andy Williams, John Denver and the Muppets and Mannheim Steamroller to my mp3 player yesterday, too.

Does anyone have any suggestions for other very merry holiday tunes?